Author Tags: Fiction, Health
Marie Warder is the Founder and President Emerita: Canadian Hemochromatosis Society; Founder and President Emerita: Haemochromatosis Society of Southern Africa; and Founder and Former President: International Alliance of Haemochromatosis Societies.In May of 2011, she received a Lifetime Achievement Award from the International Bio-Iron Society for her pioneering work in spreading awareness of hemochromatosis.
At age 42, her husband became ill with hemachromatosis but he was not diagnosed with the disease until nearly eight years later, by which time, it was estimated, he had only twelve weeks to live. As a result she formed the Canadian Hemochromatosis Society in 1980 to alert the public to the disease known as `bronze diabetes' which is caused by the body's inability to rid itself of excess iron. She self-published two books on Hemochromatosis (since made available in one volume, The Bronze Killer), and was awarded a medal of honour and certificate of honour by the Government of Canada. There is an educational interview with Warder and her husband Tom from 1983 at http://www.youtube.com/watch?v=VFGXxS9E8xM
[Also see Wikipedia for complete bio]
Since coming to Canada, she has devoted her literary efforts to the writing of more than 200 articles on the subject of Hemochromatosis, and to the production of patient literature for individuals, hospitals and other medical facilities. Her newsletters and brochures have been distributed in more than 16 countries.
Marie Warder was born in 1927 in Ficksburg, South Africa. Enamoured of Winnie the Pooh stories as a child, she dearly wanted a pair of Wellington boots like those worn by Christopher Robin, but her father had died when she was six years old and her family could not afford the boots, no matter how much she pleaded with her older sister. The price tag of eleven pounds was too much. Upon meeting a journalist and learning, to her astonishment, that it was possible to make money by writing, she sold her first newspaper article to the Cape Argus at age eleven--and earned the eleven pounds necessary to buy the Wellington boots. She later walked into a newspaper office, begged them for a job, sold her first short story at age seventeen, and worked as a journalist in South Africa. Many of her stories involve newspaper offices. Four of her novels have been used in South African schools and she has been listed by a South African Book Club as a top seven 'favourite novelist'.
She later trained as a teacher and established her own school - a prestigious private school in Kempton Park, South Africa, called Windsor House Academy -- for which she served as principal until she emigrated to Canada in the late 1970s. She also played the piano in her husband's dance band for 33 years. Marie Warder's biography is included in the archives of the National Council of Women among 'Notable Women of Johannesburg'.
Marie Warder lives in South Delta, where she was chaplain at the Delta Hospital for seven years. She released her 20th book, "Dominic Verwey - Samaritan of the Sahara, in 2006, as part of her Beaclaire Saga (Stories from South Africa Series). Her 21st book is The Yardstick, a novel. [See below] As of 2014, she had published 27 books.
Undeterred by the onset of a neuro-muscular disorder that made it difficult to write, she dictated the contents of her fictional story Penny of the Morning Star (2010) in six weeks. According to publicity materials: "Penny of the Morning Star was commissioned more than fifty years ago for use by ESL students in South African schools. At that time it contained an English/Afrikaans glossary and comprehension questions, but even then students would rather discuss the characters--particularly why, in his early thirties the Morning Star editor, Paul Jansen was prematurely grey and his behaviour often so unpredictable. The author admits that she could not really explain those characteristics, even to herself, which is why she felt so strongly that what would now very likely have to be the last book she would ever publish, would have to be a re-write of Penny—not as a school book this time—and completely updated, while still set in the post-war 1940s. Having recently witnessed what happened to some of those very students after the Angolan War, she is finally able to able to understand that editor."
Originally written in Afrikaans, April in Portugal was translated and dictated by Warder in 2010 after she heard Julio Eglesias and others sing "April in Portugal" (Coimbra) on YouTube. "In order to claim their share of the estate left by their grandmother, a Portuguese marquise, Julieta and Carlos have to be able to prove that they are capable and worthy of taking their places within in the strict, conservative family circle. For this reason, the young Carlos, a student in England, and Julieta, who is in her late teens and happens to be living in South Africa at the time, are summoned to Portugal by the Marquis Ricardo de Monzaras. At the insistence of Julieta’s friends, Erin March, who is the secretary to Julieta’s lawyer, Cameron Monroe, accompanies the fiery young Portuguese maiden to Portugal, to keep an eye on her. There, amid the luxurious surroundings of Ricardo de Monzaras’ estate, where one exciting adventure follows another, even the cool, sedate Ellen begins to thaw."
ARRIVAL IN CANADA: May 15, 1978
ARRIVAL IN BRITISH COLUMBIA: March 1980
EMPLOYMENT OTHER THAN WRITING: Jounalist, Teacher, Public Relations Officer.
Book Club awards in South Africa.
"THE BRONZE KILLER" was recommended by physicians and clinics in Canada and further afield, the book earned high praise for its author in her citation for the Canada Volunteer Medal of Honour and Certificate of Honour, which reads in part: “Through Marie’s research and most noted book, “The Bronze Killer”, she has educated doctors and the general public about the disease. As a result, hemochromatosis is now recognized as Canada’s most common genetic disorder, and routine blood tests for the disease may soon become standard diagnostic procedure.”
Warder, Marie (1989). The Bronze Killer: The Story of a Family's Fight Against a Very Common Enemy - Hemochromatosis. Imperani Publishers Publishers. ISBN 0-88925-885-6. (Updated in 2000 as The Bronze Killer: New Edition (Dromedaris Books, ISBN 9780968735800) including "Iron: The Other Side of the Story", a layman's guide to hemochromatosis)
Warder, Marie (2003). Storm Water. Stories from South Africa Series. Maple Lane Publishing. ISBN 978-0-921966-05-0.
Warder, Marie (2003). With No Remorse. Stories from South Africa Series. Dromedaris Books. ISBN 978-0-921966-03-6.
Warder, Marie (2004). When You Know -- that You Know, that You Know!. Stories from South Africa 3. Maple Lane Publishing. ISBN 978-0-921966-09-8.
Warder, Marie (2004). Tarnished Idols. Stories from South Africa. Dromedaris Books. ISBN 978-0-921966-07-4.
Warder, Marie (2006). Dominic Verwey Samaritan of the Sahara. Stories from South Africa 5. Booksurge Llc. ISBN 978-0-9733625-0-3.
Warder, Marie (2007). The Yardstick. Stories from South Africa Series. Booksurge Llc. ISBN 978-0-9733625-1-0.
Warder, Marie (2010). Penny of the Morning Star: The Story of a Girl Reporter in the Nineteen Forties. Stories from South Africa. Maple Lane Publishing.
Warder, Marie (2011). April in Portugal. Dromedaris Books. ISBN 978-0-9733625-4-1.
Warder, Marie (1953). Klei-Voete [Feet of Clay]. Die Goeie Hoop Uitgewers. ASIN B0040MIFXS.
Warder, Marie (1954). Samaritaan van die Sahara [Samaritan of the Sahara]. Johannesburg: Dagbreek-Boekkring. OCLC 37484386.
Warder, Marie (1959). Niemand so Blind [None So Blind]. Johannesburg: Dagbreek-Boekkring. OCLC 36230980.
Warder, Marie (1961). Deur sonskyn en skaduwee [Through Sunshine and Shadow]. Johannesburg: Dagbreek-Boekkring. OCLC 504531563.
Warder, Marie (1963). Die maatstok [The Dipstick]. Johannesburg: Dagbreek-Boekkring. OCLC 14643120.
[Dromedaris, Box 82, Station Main, Delta, BC V4K 1V0]
[Alan Twigg / BCBW 2014] "Health" "Fiction"
The Bronze Killer
“I had a husband in a million," says Marie Warder of Richmond, "He was big, strong, athletic. He had a permanent tan that singled him out. Then at age 42 he began to exhibit the classic signs of diabetes and suffered a change of personality. He lost his memory and his body hair. The doctors gave him only weeks to live.
"It was absolutely a miracle that we ran into one of the world authorities on hemochromatosis, Professor T. Bothwell of South Africa. He could diagnose the disease because there's a high incidence of iron overload among South African blacks due to their cooking methods and their practice of brewing beer in iron pots. He started treatments that saved my husband's life.
"I became interested in the disease and formed the Canadian Hemochromatosis Society in 1982. I guess I'm a bit of an upstart. I'm not a doctor. But the information about this disease has to be made available at a level that is readily understandable to the public. "You see, when one takes iron, everybody should have some sort of technique in the bowel to regulate the elimination of iron. When you have two genes for hemochromatosis you lack the ability to rid the system of excess iron. Over time the iron settles in a vital organ, usually in the liver. It destroys or damages the organ in which it is stored. When it enters the pancreas, you get what has been known as bronze diabetes.
"My book will be called The Bronze Killer (Self-published $12.95, Soules distributing) because of this tan that never fades. It can also cause a crippling form of arthritis, impotence and less libido in men. It is also a cause of premature menopause in women.
"The average family doctor still believes hemochromatosis is a rare disease. The research that's being done isn't filtering through. It wasn't until 1984 that I found a Canadian doctor who was doing any research. That's Dr. Valberg, Dean of Medicine at the University of Western Ontario. In Macleans magazine he has estimated there are approximately 75,000 Canadians afflicted with hemochromotosis.
"The numbers are rising rapidly because it's a genetically transferred disease. There are now about 32 million people in the U.S. who carry the gene for the disease. So far we only have figures for Caucasians but it appears it's especially prevalent in the French, Dutch, Germans, Scandinavians and the British.
"Now we're reaching the stage where we have little children with it. There are children in the Vancouver Children's Hospital with the disease. It's not fatal if it's treated. But how many people have died of hemochromotosis because it hasn't been diagnosed?
"Everyone who goes in for a checkup should be checked for too much iron as well as too little iron. I hope an iron-profile will become standard practice for medical check-ups. And I want to see a warning label on iron supplements. I have hundreds of recorded cases of women who cannot have children because when they started having menstrual problems, they were put on iron supplements.
"I've been a voice crying in the wilderness for nine years. Now several other people in the U.S. want to do a book. People are slowly starting to realize that potentially hemochromatosis could be a greater threat than AIDS."
[BCBW Summer 1988]
Publisher's promo (2007)
The Yardstick Publisher's promo (2007)
A great part of the story is played out among the dunes of the Kalahari Desert in ‘The Yardstick’, volume three of the Beauclaire Saga, in the Stories from South Africa series, but we also briefly revisit New York, Louisiana, Nelspruit, Johannesburg and Bethlehem, as the history of the Ashton family and their Nelspruit citrus farm continues. Now we find a disillusioned Benjamin Ashton—about to become a grandfather—forced to consider relocating the South African members of his family, which could well bring to an end what has been for them a blessedly happy era on their Lowveld citrus farm.
At the same time, the integrity of Ben’s altruistic son, a physician, is severely tested as Jordan is unwillingly drawn into the sordid affairs of Tristan Connaught, the womanizing partner in their upscale practice near Johannesburg. Unfortunately Tristan is none other than the son of Father Clifford Connaught of Bethlehem in the Free State, who played such a important role in the lives of both Ben Ashton and his brother, Jamie; and, together with them, we are re-introduced to many of the well-loved characters from ‘When you know that you know, that you know! or The redemption of Benjamin Ashton’.
Handsome, brilliant and charming, young Doctor Connaught is much sought-after, chiefly by bored, hypochondriac, society women! Having grown up in Louisiana—among homeless children, in a shelter financed by Amy-Lee Ashton, and of which his parents are the directors—Tristan is proud, upon his return to the country of his birth, to count the rich and famous among his patients. When, during a visit to his great-uncle, Doctor Hugo Connaught, in a remote and arid village situated in the Kalahari Desert, he persuades Doctor Hugo to allow him to respond to a call from an eccentric, hermit professor who has chosen to live in isolation with his two, reputedly beautiful young daughters, he soon finds himself in a unique situation which is both intriguing and challenging.
Penny of the Morning Star ($12.95)
Publishers Press Release
The story of a girl reporter in the nineteen forties. “Penny of the Morning Star", was commissioned more than fifty years ago for use by ESL students in South African schools. At that time it contained an English/Afrikaans glossary and comprehension questions, but even then students would rather discuss the characters—particularly why, in his early thirties, the Morning Star editor Paul Jansen was prematurely grey and his behaviour often so unpredictable. The author admits that she could not really explain those characteristics, even to herself, which is why she felt so strongly that what would now very likely have to be the last book she would ever publish, would have to be a re-write of Penny—not as a school book this time—and completely updated, while still set in the post-war 1940's ... because, having witnessed what happened to some of those very students after the Angolan War, she is finally able to able to understand that editor.
Re-examining the Angola conflict
from Marie Warder
Ever since watching a CBC special on post-traumatic stress disorder, my mind has been filled with thoughts of family members who have lived through wars, and I realized, for instance, that my father was probably still in uniform when my sister was born, and that my mother lived through five wars! I suddenly realized why one family member could not sleep indoors when he came home from World War II (he dragged his mattress outside and slept on the lawn!) and I wondered why so few remember South Africa’s role in Korea, and the dreadful Angola conflict into which my son and other 16-year-olds were dragged by Henry Kissinger and Gerald Ford.
Who Will Be Extolled – And Who Will Be Maligned?
I am a South African expatriate who has been a Canadian citizen for many years, and although so much time has passed, I feel again today, the agony I felt when, as a school principal, in South Africa, I was obliged to hand out forms to male students, about to be conscripted as soon as they turned 16. Even more so when one of them happened to be my own son who, as consequence, would very soon be with the South African Air Force in Angola. Judging by recent notes on Facebook, and letters from many places around the world to which those ‘boys’ have fled, they expected a change of scene to heal the nightmares caused by imprinted memories of Angola which have not abated.
Today many have still not quite recovered from PTSD. Neither had a middle-aged man who sat behind me in church. But none is angry because of having had to go to war. When they talk about it, the conversation very quickly turns to their resentment at having their units recalled before the job was done!
I returned to South Africa a few years later, and, in doing research for a book, was able to talk to several people of that generation – some of them, former pupils – and herewith, for your interest, I have the temerity to pass on some of the remarks made, and noted, at a meeting in Johannesburg, and a great deal of correspondence before and since that time. In case readers are not interested in all the details, I shall mainly highlight whatever supports my argument.
“Angola!” the widow of a former school principal exclaimed passionately. Mark (her husband) got to the stage where it just about broke his heart, when, year after every year, as a new group of his boys turned 16, he had to start handing out the forms for registration in the armed forces. He’d seen too many of them return, changed forever! South Africans had never been conscripted before.
‘Our country has had a proud history of volunteering for active service – because our men and women believed in a cause!’ he would say desperately. ‘Now they’re being pulled into a Vietnam-like conflict that has nothing to do with them, and which they cannot understand; and, when they return, some maimed and crippled – not only physically, but mentally and emotionally – it is to find that others are occupying the jobs they might have had!’”
Was It Worth It?
“To this day I don’t think that any of that was worth it!” was my impassioned response. And in a 1997 interview with President Ford, he certainly didn’t seem to think so either. When the interviewer asked him whether he thought that if aid had been able to flow unimpeded to Angola it would have made a great deal of difference in the long run, he replied: ‘Probably not, because they’re still fighting there!’ He considered the net result to be that Angola was destined to have continued turbulence between the government on the one hand and rebel forces on the other.
“By the same token, didn’t someone actually go as far as to say that President Ford had permitted Kissinger to ‘design a disaster in Angola’?” someone else wanted to know.
Again there are so many controversies. One explanation was that the United States could not ignore Soviet and Cuban attempts to gain an African foothold when Angola was about to receive independence. And then, when Congress decided that no more money was going to be poured into this conflict, the field was left open for the infusion of additional Cuban troops and Soviet arms. I think it was John Stockwell, the chief of the CIA Angola task force, who said: “Most serious of all, the United States was exposed, dishonored and discredited in the eyes of the world.” They had lost, and 15,000 Cubans were installed in Angola “with all the adulation accruing to a young David who has slain the American Goliath.”
Operation Savannah, the South African Defence Force’s 1975–1976 covert intervention in the Angolan Civil War
“The South African Defence Force’s Fox-Bat, X-Ray and Zulu columns were already within sight of the lights of Luanda when they were recalled! Once embroiled in this, the South Africans, having entered Angola during Operation Savannah, had within thirty-three days, covered more than three thousand kilometres. Within artillery range of Luanda, they were forced to withdraw when covert Western support was withdrawn!”
“None of us harboured any resentment towards Ford, personally,” someone wanted to make clear to me. “The US Senate had withdrawn monetary support, and we just felt that America as a whole had let us down. I recently read somewhere, perhaps on the Internet, that South Africa was ‘defeated’ — but it was not! We just plain and simply had the carpet pulled out from under out feet!”
“And so the question, ‘What was it all for?’ remains unanswered,” was another rueful comment. “And for the boys who came home maimed — or the families of those who did not come home at all — was any of it worth it, in the end?” “How incredible it is that such controversy can still exist, about that part of it,” reflected a man from the Kalahari. “And it helps to remember that, while today, ‘Islamic fundamentalism’ is the chilling word in many countries, in those days it was ‘Communism’! I can understand that, with Mozambique just across the border to the East of us – with the border of what was then South-West Africa, not too far to the west, and with Angola above that, to the North, it must have given serious cause for alarm when, late in 1974, sizeable shipments of arms and ammunition were being ferried from the communist world to the Popular Movement for the Liberation of Angola. That had sprung from a Marxist party founded in 1956, with a strong following in the Angolan capital of Luanda.
“I find myself less angry now after coming to believe that there was ample evidence of the extent of the military support flooding into Angola, to the MPLA, throughout the 1975 run-up to the elections. But what I still find inconceivable is that Cuba would protest that Castro only decided to send troops to Angola on November 4, 1975, after the South African invasion of that country, rather than vice versa, as America’s Ford administration persistently claimed.
“By the time Angola achieved independence in November that year, and by the last day of February in 1976, which, as I recall, happened to be a Leap Year, all the Portuguese forces had withdrawn. Cuban forces had begun to move into Angola in April of the previous year, and South Africa then faced the prospect of a communist state bordering South-West Africa.”
“Which at that time, in terms of the Peace of Versailles, was still a South African protectorate,” I put in, nodding my head in comprehension of what that situation would portend.
“Precisely. One school of thought has it,” the business executive put in, “that, after the reverses Henry Kissinger had recently experienced in Vietnam, and the paranoia about Communism at that time, he would naturally have wanted to support the pro-west ‘National Union for a Total Independence of Angola’, which, as you must know, was a largely military force in the Angolan Civil War fighting Angola’s Marxist regime. Experts describe the Angolan war as ‘one of the most prominent Cold War conflicts, with one side being aided militarily by the United States, and the other, receiving similar support from the Soviet Union.’
“My own, personal belief is that the insurgencies of Jonas Savimbi’s UNITA rebel movement in Angola, the ‘Mozambican National Resistance’, as well as the CIA-backed advance of South African troops in Angola, were indeed supported by America. After all, Kissinger did make it clear that unless Cuba withdrew its forces from Angola and Mozambique, diplomatic relations would not be normalized.”
“My husband would have agreed with you, wholeheartedly,” said the widow, a nurse. “And that entire Angola-South-West African thing went on interminably! You know, I am ashamed to confess that, until this moment, I had forgotten how widespread the anti-Portuguese revolution was. My earliest recollection is of lying on my bed in the Nurses’ Quarters, listening to the Lourenco Marques radio from Mozambique, because we did not yet have a commercial radio station of our own in South Africa at that time, and hearing what was probably the first sounds of impending trouble, shortly before the transmission was interrupted. Lourenco Marques used to be a favourite holiday resort, and it was sad to learn that friends who used to live there had had to flee to Portugal.”
What Was It All For?
“A friend happened to show my husband and me an article in the New York Times, written by Bernard E. Trainor, now Lieutenant General Trainor. He wrote about how starkly evident the high ‘human cost of the 15-year conflict along the border between South-West Africa and Angola’ was, and went on to comment that most of the wounded at the No. 1 Military Hospital in Voortrekkerhoogte (near Pretoria) were teen-age soldiers serving in segregated units of the South African Army. He particularly mentioned one eighteen-year-old who had ‘lost his right leg when rebel jet fighters attacked his unit. Like most of the white patients, he was doing his required two years’ duty in the military.’ Someone to whom Trainor spoke, assured him that the army would ‘fit him with a prosthesis, train him in a civilian skill, and give him a lifelong disability pension.’ But that was enough for us! That was day we started becoming voluble in our opposition to South Africa’s participation in the conflict.”
“And yet,” the businessman responded thoughtfully, “I still think that what made it all worse for us – even for me who, as I said, did only three-month stints at a time, myself – was the fact that, when we were so close to winning, the government suddenly withdrew our troops. … That made it all so futile! What was it all for?”
A young man who had lost a leg and now, at peace with himself, counselled Angolan Vets who suffered from PTSD, admitted: “Do not think for one moment, that I was always like this! Because of my own experience of healing, I am dedicated to helping the people to whom I minister. I just long for them to have the same peace restored to them, that I have been blessed to find once more!” He handed out a slip of paper, explaining that the extract printed on it, had been copied from an essay written by his teenage daughter, Lucia, as part of an assignment entitled, ‘When my father was young!’
“I am so grateful that I was able to tell her about this part of it,” he said, unemotionally and without rancour. “There are no longer any buttons that dare not be pushed!” With a smile that might have been perceived as apologetic, he added: “But I still wish that we had been allowed to finish the job! To have been withdrawn just when we were winning, makes it all so tragically futile, doesn’t it?”